Tkaronto Indigenous Health Data Cooperative

Data Disempowerment and Health Inequity

Indigenous Peoples' health outcomes could be better, yet communities often cannot leverage their own health data to drive self-determined solutions. The current landscape includes:

• Health inequities across indicators, with limited system representation
• Data disempowerment, with limited infrastructure to assert Indigenous data sovereignty
• Capacity gaps in data literacy and Indigenous-aligned data management standards
• Funding dependency where political agendas can override community needs

Sustainable Revenue Streams

Analytics is the primary business activity, structured as:

• Subscription model with institutional payers subsidizing costs to enable lower prices for Indigenous community agencies
• Direct sales model to support broader ecosystem lift

Additional revenue streams include:

• Research partnerships that integrate cultural integrity into studies
• Licensing of data management standards, technical developments, and the cooperative model
• Development of culturally aligned health technology products and services

Four Clusters of Progress

• Community and stakeholder engagement: sustained participation, formal partnerships, institutional alliances
• Community co-designed MVP: governance architecture, data infrastructure plan, program design
• Comprehensive feasibility validation: legal and regulatory, financial and risk, market analysis, technology
• Implementation readiness and sustainability: securing pilot funding, technology partnerships

Scalable Model

The cooperative is designed to be scalable:

• Across other Indigenous communities (regional, provincial, national)
• Potentially to other underserved groups facing similar data disempowerment
• Beyond health, into sectors such as justice and education